Experiences of Mothers Accompanying Their Children With Severe Motor and Intellectual Disabilities for First-Time Blood Collection

Abstract

The purpose of this study was to clarify the experiences of mothers who accompanied their children with severe motor and intellectual disabilities for blood collection for the first time and to examine the significance of the mother’s presence during blood collection for children who have difficulty verbally communicating their intentions. Semi-structured interviews were conducted with 10 mothers at two pediatric neurology outpatient clinics. The data were analyzed using thematic analysis.

Three main themes were identified: [distress], [fulfillment as a parent], and [hope for better blood collection]. The mothers expressed frustration by the healthcare providers’ approach, which did not align with their children’s characteristics. The mothers empathized with their children’s pain, found their child’s efforts and growth, and re-recognized their parental role. Additionally, they sought a better blood collection environment and recognized the importance of considering the child’s characteristics and the participation of parents in the process.

Our findings suggest that cooperation between healthcare providers and parents improves blood collection support.