Personal Health Recordにおける患者のオプトインとアクセスコントロール機構の開発

抄録

Personal Health Records (PHRs), a system that enables people to manage, share, and apply personal healthcare data using information and communication technology, is expected to be an effective method to realize a vigorous society with longevity. However, it is not clear how the user's opt-in agreement and self-management of personal data may be achieved. Thus, we developed a new method to optimize opt-in agreement and access control for users in a PHR developed at Chiba University, the Social Health Assist Chiba (SHACHI). In SHACHI, participating facilities such as hospitals, clinics, pharmacies, and nursing care services display a user's unique two-dimensional bar code on a web browser. The user reads the bar code by him/herself using the “SHACHI App,” which is installed on his/her smart phone beforehand. SHACHI considers this process to signify the user's opt-in agreement. Moreover, users can retract or resume this agreement using the SHACHI App at any time. This system enables the users to self-manage personal data in PHRs. The new system satisfies government requirements and the conditions required for PHR presented in a previous study. This new system can be adopted easily by other PHRs. We plan to identify the required functionalities of standard PHRs and secondary utilization of data stored in PHRs which may be managed through the new system.