抄録
Amyotrophic lateral sclerosis（ALS）is an incurable disease that leads to the loss of muscle movement, resulting in symptoms such as difficulty swallowing, communication disorders, and respiratory failure. Palliative care from the early stage of involvement is crucial for these patients, as it is necessary to alleviate the pain and suffering associated with treatment.
The current ALS treatments aim to slow the progression of the disease, but are not curative. The average life expectancy of patients post-diagnosis is considered to be 3 to 5 years, and in Japan, many patients choose to pass away without opting for the use of ventilators.
Due to the individual variability in the progression of ALS, particularly in dental care, customized care for each patient is necessary. From our experience, dental symptoms can appear as early signs of ALS, and failure to appropriately assess them can lead to delayed diagnosis.
We believe that dental care for ALS patients must address various challenges such as difficulties in eating and swallowing, choking risks, communication barriers, and particularly respiratory issues in patients using ventilators. It is essential for dental professionals to function as part of a multidisciplinary home healthcare team, ensuring consistency in patient care.
Ultimately, our research advocates for a comprehensive team-based approach in treating ALS patients, integrating dental care into a broader medical plan. This approach is vital in maintaining the quality of life and dignity of patients, and is aligned with the principles of narrative-based medicine.
