Purpose: This study investigated the emotional experiences of caregivers for family members dying at home in order to identify the factors that constitute anticipatory grief.
Methods: Data were collected using semi-structured interviews conducted on 10 bereaved families in which a family member had died at home. The recorded interviews were qualitatively analyzed using the KJ method. After analyzing the data individually according to each case, a synthetic analysis was conducted in order to create a diagram of the factors of anticipatory grief.
Results: Six factors that constitute anticipatory grief were identified. First, we extracted the core factor:
i. precedent anxiety regarding bereavement
In addition, the following five factors were found:
ii. a sense of living in another world; thoughts are being controlled, a sense of being separated, and a sense of estrangement
iii. a feeling to result by mourning over death of the loss; spiritual pain
iv. a sense of anger without an outlet; a grudge/regrets/anger towards the disease
v. pressure caused by coordinating care at home
vi. large physical burden caused by prioritizing caregiving over other domestic responsibilities
We also found the following two factors of the emotional experience of the caregivers following bereavement:
i. a positive feeling regarding caring
ii. a sense of guilt that cannot be alleviated; regret regarding the care provided and judgments made
Conclusion: The present results will be used for the future development of an “anticipatory grief assessment tool.”
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