In this study, we performed a meta-synthesis by the method process of Noblit & Hare to clarify the experience of family caregivers who care for the older people with dementia at home in Japan. The scope of the literature search was narrowed down to papers published after 2008, and nine Japanese and two English papers were selected.
The experiences of the family caregivers were integrated into ten categories based on the results of this study. It was become clear that once family caregivers are able to “establish proactive strategies”, they would “find ingenuity to continue caregiving” and “find meaning in the caregiving experience”. Furthermore, this paper clarifies that when there is “a disturbance of familial relationships due to caregiving”, or there is “difficulty in using the service”, the caregivers will take “measures to protect the safety of care receivers” (e.g., by concealing dementia, locking the front door). Thus, examining the support in line with the needs of the whole family is necessary to strike a balance between ensuring the safety and independence of care receivers and protecting the lives of family caregivers themselves.
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