The present study aimed to identify the decision-making process and feelings after decisions among children with cancer regarding adjustments to school-life activities and information sharing. We conducted semi-structured interviews on 10 outpatients in 10’s with cancer and analyzed using an inductive qualitative method.
As a result, when children decided regarding adjustments to school-life activities, they “perceived their physical condition” and “aimed to act the same as everyone,” then “discussed with their parents and teachers”. Next, they attempted to predict “the effects of their physical condition on activity performance and changes to their condition thereafter”. Finally, they decided “whether and how to participate in school-life activities.”
When deciding on sharing information, children assessed “perceptions of their disease held by students and teachers,” considered their options through “discussions with their parents and teachers.” Then, they decided on with whom information to share and how much information to share about their condition, such as their disease, physical condition, or wig.
After making decisions regarding activity participation and information sharing, children reported a sense of “satisfaction.”
These findings suggest that to support children with cancer in school-life adjustment, nurses should consider their mindset and decision-making process, especially since these patients perceive their physical condition, aim to act the same as everyone, and are sensitive to others’ reactions.
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