Purpose: To clarify the process of parental empowerment that supports the social lives at home of their severely disabled children with medical complexity.
Subjects and Methods: Ten mothers of children participated in a semi-structured interview. Verbatim records were analyzed by the modified grounded theory approach (M-GTA; Kinoshita Y).
Result: Eleven [categories] and 46 were extracted.
Short story-line with categories: Two categories related to pre-discharge to the early stages of family life were extracted: [Preparation and resolution for discharge and home life] and [Recognition of limitations of the care support system and hope for flexible service usage]. While receiving [Professionals' attention and support to parents and siblings], the parents showed [Collaboration as a peer and demonstration of abilities]. Through parenting, they sought an [Education and environment to promote child development]. At the risk of falling into an extreme state due to burden of medical care, parents fell into conflicts such as reviewing their own lives. Even so, parents gained confidence and overcame themselves by [Parent's social participation and child-rearing ability under conflict]. Along with [A sense of security that there is a multifunctional facility as the last fort], [Utilization and coordination of social resources] was linked to [Satisfaction with parenting role and enhancing family life].
Discussion and Conclusion: From the discharge preparation stage to life at home, parents support their children's social lives and have become gradually more empowered. Support and coordination from professionals and [Desire and action as a parent] are the major sources of parental empowerment.
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